This is about my Granddaughter Kendall, She and her mom live with us. When she was 6 years old, We were confused by a sudden weight gain and loss of 20 pounds up and down in one month. Then the whites of her eyes were yellow one morning. We didn't know what to think of that so we took her to the ER where they rushed her into ICU after a finger stick. She had had frequent urination and her feet going numb for at least a year before that but her Doctor shrugged that off with no tests when we told him. At the hospital they found she was in Ketoacidosis. After 10 days in ICU she was released but that was before they could regulate her BS levels .. Her levels remained unstable for 2 yrs up and down between 50 and 500 Seeing endo after endo. until the Joslin Clinic in Boston Massachusetts agreed to see her even though they did not take her NH health insurance, Then the clinic even took her on as a patient at no cost so they could help her and also to study her rare condition of insulin resistant type 1 diabetes. She was given a pump and within a year they managed to keep her levels hovering around 200, which is as good as it gets for her. We do carb counting and the pump does the rest. She is 16 now and has managed to stay healthy. She does a finger stick every 2 hrs and always before food or exercise and her mom checks her in the middle of the night. She wakes with panic attacks often when her levels are low. She worries that she just wont wake some day. We worry about that too.

Leona
Titusville, FL